a best friend who really... there is no better in the world
for her husband
for our families
for visiting teachers
for amazing friends
for heavenly fathers timing
For sending my son a twin brother
for letting me get pregnant with coco before we had any signs from ra ra
So long story made short
Our little ra ra got diagnosed with high functioning autism yesterday
He's still my son but he has autism
he's not autistic.. that dosn't define him
I cried a lot till there weren't any tears left
not that I havn't cried the last 6 months but I finally had an answer and something to go off of
I knew it was coming.
I let go and let my heavenly father take charge. and as soon as I did things
became clear and I felt strength flow into my body.
I know this is happening for a reason and he thinks we can do it so we're gonna flow with it.
and I'd braced myself But it still hurts.
It's going to be a long couple of years doing early intervention
What's good is that he is at the high end of the spectrum he talks.. he cuddles..he gives ok eye contact... and has no repetitive behaviors. And we just happen to live in the best city besides los angeles for autsim programs. They define it as a neurological disorder where the building bridges of his brain just arn't all the way formed
..so we get to be bridge builders the next couple years
so with lots and lots and lots of therapy and behavior patterning we can connect his brain bridges.
My theory on how it happened... it's genetics maybe an auto immune disease.. that was triggered by something either environmental or while he was in the nicu having a lack of oxygen to his brain
so later in life he might just be the shyer kid with some quirks you all know someone like that right
think sheldon on big bang theory
nothing I don't like ...;)
It's overwhelming all the changes my little family will be going through the next year.
I Think I still have hope.. just a different kind...
I'm trying to pull through the haze
It's overwhelming at this stage knowing
I will have a team of 4 people in my house very single day for the
next 3 years doing intensive therapy on him
Not going to lie when I say I'm not sure how I feel about it
I hope I have time for my other kids and I learn to balance everything in my life
I hope that My heavenly father will lift me make me strong that he'll help inspire me
as to what I need to do for harrison on his road to recovery and being the best person he can be-
I Hope I can educate people about autism. Be a voice for my son.
So many people think of something so awful when they hear the word.. I know I did.
I was wrong
There are many things people can do to help it be less severe.. esp if its high functioning
and you catch it early to help teach them things when there brains are the most capable of learning
He's not cold he shows love.. kisses me hugs me- he expresses emotion..basically he just learns in a different way and can concentrate really hard on things or be very non interested in things. He needs help with social norms and transitions from one thing to another
If it wasn't for a blog post on someone talking abut autism and him having a twin I never would have caught what was happening to my son that early. I'm so so grateful we caught it early
I'm thankful for early intervention, diet studies and the gospel that are giving me hope this week.
My one thought on this whole matter...
I feel I need to express Because I'm an emotional person and I worry about this
Don't be afraid of my son
of talking to him- he might not look you in the eye quite yet but he's listening
He's not that different from you and I.
Don't be afraid to talk to me about it. In fact I'd love to tell you our story
I don't want to be stared at and pittied.
I'd rather you think of my son as a blessing
a blessing to teach me, us many people something about life.
a dear friend told me a story this week it struck a cord deep within my soul
It's like your on a trip to paris you've learned the language studied everything you get on the plane take the ride start to land and the pilot announces.....
WELCOME TO HOLLAND!
Hmmm wasn't expecting Holland.. I'm a little sad.. but I bet Holland is beautiful too.
And Johnson said to me Bree you see the beauty in so much This is probably why RaRa was sent to us. Life seems so much bigger already. I'm beginning to see things differently...and although I hurt a lot right now I know it will eventually be a huge blessing in my life.
And we'll find bliss in the darkness
Thanks for the prayers we still need them the love the phone calls the food